Patient Advocates - The Flour In The Cake

As my Mom continues to suffer the side effects of a fluoroquinolone drug, I am more convinced than ever of the importance of patient advocates, especially for the elderly. Mom has Lymphoma, the bad kind, but her symptoms today - confusion, anxiety, and disorientation are not related to her underlying disease or her age. I know the symptoms all to well, the nasty side effects of fluoroquinolones, as I too was “floxed“.

Mommy Without Hair

It's impossible to pick which part of cancer is harder than others, but one of the most difficult is helping children cope with the devastating illness and the havoc it creates.

Today I am thrilled to share a new resource I just found - an illustrated children's book designed to help children understand about a parent's illness.

What exactly does healing mean?

Dr. Geffen's Seven levels of healing we need to address to regain our full selves:

1. Information and knowledge (got to ground yourself in reality to make the best treatment decisions).

2) making connections with others (family, friends, support, counseling) to provide a network to lend helping hands when needed and the occasional shoulder (to cry on in the bad times and hug in the good).

National Cancer Information Contact Center a Valuable Resource

For 35 years, NCI’s CIS Contact Center has been just a phone call away for anyone with questions about cancer. Since it was established in 1975, the CIS has answered well over 10 million calls. Whether an individual has been diagnosed with cancer or they have a loved one with cancer, the service is available free of charge.

Faking cancer means big bucks for young Canadian woman

This article in the Toronto edition of The Star tells it as well as coverage anywhere else: a 23 year old Canadian woman named Ashley Anne Kirilow shaved her head and her eyebrows, plucked her eyelashes, and starved herself in order to look like a cancer patient in the midst of chemotherapy.

Empowerment Rally hosted by Cancer Treatment Centers of America

The Empowerment Rally, hosted by Cancer Treatment Centers of America (CTCA), features a diverse group of cancer advocates who will participate in a roundtable discussion on patient empowerment and share their ideas and insights based on their personal cancer journeys.

The Empowerment Rally is a platform for the voice of these five survivors to discuss what mattered most in their cancer care, choosing the best treatment facility, and sources of empowerment during their cancer journey.

Plan Your Winter Vacay to Do Good in the World

A Weekend Getaway with a Purpose

Sign Up Now for The Leukemia & Lymphoma Society's Team In Training

The days are getting longer and hotter but it's not too soon to make this winter's vacation a life saver. For the experience of a lifetime you can spend the next four to five months preparing for a full or half marathon or century ride at a fabulous destination all while raising money to help fund blood cancer research.

Three-day canoe trip on the Colorado River for Cancer Survivors

WHAT: Three-day canoe trip and camping on the Colorado River

WHO: Single cancer survivors who are 21 and older and at least three months post-treatment

WHY: Fun, connection, outdoor adventure, and informal discussion about life and love for the single cancer survivor

How to Keep Working with Cancer

10 ways to make work easier.

Arm yourself with facts.
For example, cancer patients take no more sick time than other workers.

Work with your doctor — to work better.
Talk to your doctor about treatment options, like oral chemotherapy, that can be taken at home. Ask about drugs and other methods for alleviating side effects.

What they don’t know can hurt you.
The Americans with Disabilities Act applies only if your employer knows of your disease.

Do You Have a Bucket List?

If someone you know if facing the end of life, and has an unfulfilled item on their bucket list, then maybe this information will help.

Dream Foundation is the first national wish-granting organization for adults 18 years of age or older. Dream Foundation has granted thousands of dreams to adults who are emotionally, financially and physically devastated by terminal illness.