Lymphoma has emerged as a cancer worthy of having respected organizations devoted to helping those affected and researching new treatments. You may want to contact the following groups in the US in your search for support of lymphoma:
Organizations
• The Lymphoma Research Foundation was formed in 2002 by the merger of the Lymphoma Research Foundation of America and the Cure for Lymphoma Foundation. This group has awarded millions of dollars in over a hundred lymphoma research grants. Not just devoted to research, they are there to help patients and happy to answer questions and help those looking for information. They also have a good patient support resource listing.
http://www.lymphoma.org (LRF@lymphoma.org)
111 Broadway Ave. New York, NY 10006 USA
(212) 349-2910 or toll-free (800) 500-9976
• Cure for Lymphoma Foundation (CFL) - merged with LRFA to form the Lymphoma Research Foundation (see above)
• The Lymphoma Foundation promotes basic research and clinical studies with regard to the causes, treatment and cure of all patients with Hodgkin's disease and the non-Hodgkin's lymphomas as well as the allied disorders that plague the lymphoma patient in the form of leukemia, second primary cancers of the breast, colon, ovary, lung, neurofibroma and other malignant tumors and immunological syndromes such as multiple myeloma. The Lymphoma Foundation supports and informs practicing physicians, clinical investigators, basic research scientists and the general public in matters concerning all forms of cancer and promotes the education and application of the latest and most effective forms of medical science.
http://www.lymphomafoundation.org/ (lymphoma@aol.com)
P.O. Box 6236 New York, New York 10128 (212) 831-5332
• The Leukemia & Lymphoma Society (formerly The Leukemia Society) has my sincere thanks. Besides great information (free in the mail), you may be eligible a small reimbursement for medical expenses. They have good info on lymphoma in general.
1311 Mamaroneck Ave, White Plains, NY 10605 USA
Phone: (914) 949-5213 Fax: (914) 949-6691
• The Cutaneous Lymphoma Foundation (formerly the Mycosis Fungoides Foundation) is dedicated to all forms of lymphoma of the skin. Recommended.
PO Box 374 Birmingham, MI 48012-0374 USA
(248) 644-9014, Fax (248) 644-9014
E-mail: info@clfoundation.org
• The KDH Hodgkin's Disease Foundation was organized to fund clinical trials, research and publications relating to finding a cure for Hodgkin's Disease. Donations to this foundation will be forwarded to Memorial Sloan-Kettering Cancer Center in New York where a team of doctors are focused on clinical trials and the treatment of Hodgkin's Disease. 9 Lakeshore Blvd. Massapequa, NY 11758
• The American Cancer Society has an informative site (not lymphoma specific). They have excellent materials available free by mail on lymphoma and cancer treatment. Their phone number in the US is (800) ACS-2345 toll free.
1599 Clifton Rd. Atlanta, GA 30329-4251 USA
• The US National Cancer Institute has free literature by mail, on the web, by fax, or by phone at 1-800-4-CANCER - (800) 422-6237.
9000 Rockville Pike, Bldg. 31, #10 A-24
Bethesda, MD 20892 USA
• The National Children's Cancer Society (N.C.C.S.) provides direct financial assistance and emotional support to children with cancer and their families nationwide. Their mission is to improve the quality of life for children with cancer and to reduce the risk of cancer by promoting children's health through financial and in-kind assistance, advocacy, support services, education & prevention programs.
http://www.nationalchildrenscancersociety.com/
1015 Locust, Suite 600 St. Louis, MO 63101 (314) 241-1600
• The National Coalition for Cancer Survivorship (NCCS) is a grassroots network of individuals and organizations working on behalf of people with all types of cancer.
• The Neuropathy Association is dedicated to help those with peripheral neuropathy (PN). PN can be caused by some chemotherapy regimens. 60 E. 42nd Street, Suite 942 / New York, NY 10165 (212) 692-0662
• Corporate Angel Network offers free air flights on corporate jets for cancer patients (5 day notice preferred).
Westchester County Airport, One Loop Road
White Plains, NY 10604 USA (914) 328-1313
8:30-4:30 Monday - Friday Eastern US Time
Email: info@corpangelnetwork.org
Financial Help
• Please see the separate Financial Help Page
Patient Sites
• Hodgkin's Disease
• Non-Hodgkin's Lymphoma
This site continues to seek information on organizations providing support for lymphoma patients and their family & friends. Please
write if you know of such organizations.
Sponsored Links
SupportGroups.com aims to build awareness and provide support for Hodgkin's Lymphoma and Non-Hodgkin's Lymphoma. If you are a friend or parent of a person that has been diagnosed with Lymphoma, or you have been diagnosed with Lymphoma, you are not alone. Share personal experiences, evaluate information and get support during times of need, illness, treatment or recovery.