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Lymphoma Information Network » Lymphoma Info » Hodgkin's Lymphoma / Disease Personal Web Sites and Blogs

Hodgkin's Lymphoma / Disease Personal Web Sites and Blogs

In the last few years the number of web sites and blogs written by those affected has risen steadily - from a small handful in 1994 until the number you see today with more coming. Here are personal as opposed to professional web pages (which are listed in pertinent sections throughout the site).

Blogs


• Anne's Journey 2 Beat HD - new address http://www.fight2beat.com
• Preston Hunt's Hodgkin's Disease Journal - he was on the Stanford V protocol
• Rogier's Road to Recovery e-mails/blog entries
Cliff just underwent a BMT for Hodgkin's
Eric tells of his encounter with Hodgkin's
Alese is trying SAHA as a treatment
Natalia had a newborn when she was diagnosed
Robli is a mom, nurse, Hodgkin's & Renal Carcinoma survivor - whew!
Ann-Marie chronicles her fight with Hodgkin's
Sarah, has a great blog: Journey to Babeland
Duane is facing a stem cell transplant after a recurrence from Hodgkin's
Dave is a Hodgkin's 3B patient with an excellent blog, please check it out


Websites


Lida has recently been diagnosed with Hodgkin's. Quite the world traveler
Heather is a survivor of Hodgkin's and has a beautiful website with a variety of items
Sean is a courageous kid in the UK fighting Hodgkin's
Jerry's Site, in German, documents an 11 year old with stage 4A NS Hodgkin's
• Another Robin, aka Super Chemo Girl, uses humor in her description of Hodgkin's
• "Lymphoma Libby " has a wonderful attitude about her Hodgkin's experience
• Robin is the author of Hodgkin's Disease Information for Kids - explaining Hodgkin's to a younger audience
Susan has a wonderful detailed description of her Hodgkin's experience including BMT. Recommended
Glenn Fleishman is an author who writes about his experiences (and a whole range of other subjects)
• Glen's Hodgkin's Site is now Remission.org - visually pleasing with good info for any Hodgkin's patient. There is also a good description of ABVD chemotherapy for Hodgkin's
• Dave Kristula hosts Dave's Happy Little Hodgkin's Site
Li Sparks Guethlein has an older guide for the newly diagnosed including treatment information
• Mike Lack has an excellent site and very good information on the Stanford V protocol for treating Hodgkin's Disease
• Diana's Hodgkin's Visualization site is a favorite (Blort!)
Miha Frlec - a Hodgkin's survivor in Slovenia has a long running cancer page


Site Additions


Please write and send new page and information links. Be specific that you want the page added to Personal Web Sites (or another page) and include how you found out about this site.

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support groups

SupportGroups.com aims to build awareness and provide support for Hodgkin's Lymphoma and Non-Hodgkin's Lymphoma. If you are a friend or parent of a person that has been diagnosed with Lymphoma, or you have been diagnosed with Lymphoma, you are not alone. Share personal experiences, evaluate information and get support during times of need, illness, treatment or recovery.

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Since the early 1970s, incidence rates for non-Hodgkin’s lymphoma have nearly doubled. Incidence rates for Hodgkin’s disease have declined about 60%. Better means of diagnosis has also increased the number as doctors better understand cancer of lymphocytes verses other diseases.
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