I am always excited to find new resources to tell you about and this blogpost should be filed in the “I can’t believe I missed this one” category.
You may have noticed we don’t have any info on our site on Cutaneous T-cell lymphoma, or it may not be a term with which you are familiar. We’ll start to rectify that immediately. Cutaneous lymphoma is a general term for many lymphomas of the skin including:
• cutaneous T-cell lymphoma
• mycosis fungoides
• Sézary syndrome
• cutaneous anaplastic large cell lymphoma
• adult T-cell leukemia/lymphoma
• peripheral T-cell lymphoma
• lymphomatoid granulomatosis
• granulomatous slack skin disease
• B-cell lymphoma
• pagetoid reticulosis
There is a greater frequency among men than women and it is more common after the age of 50. There are approximately 16,000 to 20,000 cases across the United States. Treatment varies, and many patients live normal lives while they treat their disease and some are able to remain in remission for long periods of time.
If you are interested in learning more, or you or a loved one needs information, the absolute best place to go is the Cutaneous Lymphoma Foundation. They offer the very latest on research developments with educational seminars, patient assistance programs, local gatherings, a listserv, and other forms of support.
Cutaneous Lymphoma Foundation
PO Box 374
Birmingham, MI 48012
(248) 644-9014
http://www.clfoundation.org
