I have follicular b-cell lymphoma; had one lymph node removed and denied any more treatment. What can I expect now?

Are you symptomatic? and

Are you symptomatic? and what stage / grade were you diagnosed at?

Stage I, low grade. I cough

Stage I, low grade. I cough alot, have night sweats, and my skin ithces. This will last a month or so, stop a week or so and start again. Has been going on for about 6 months.

that's kind of surprising to

that's kind of surprising to hear you're having B symptoms at stage I FL, especially one deemed to be low-grade. Typically FL isn't found until it's in later stages and only then because it was found by accident. under many circumstances, most patients with FL do nothing, take no treatment, because there's no reason to do so, i.e. they're not having any symptoms and the disease is so slow-growing that there's no reason to intervene. A reason to intervene would be the kinds of symptoms you're having, because FL is not considered to be curable. Manageable yes, curable no.

At any rate, by choosing to go without treatment, I think most would expect the disease would follow its own slow clinical course, very slowly advancing from stage to stage and causing increasingly irritating symptoms like the ones you're having. This could go on for many years. I just find it strange that a stage I FL would be symptomatic; most patients in stage I FL have no idea they even have a disease. I wonder if your doctor gave you any idea of the clinical course, because despite being low-grade, you're exhibiting B symptoms which would in other cases suggest a poorer prognosis than if you were not.

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