I have DLBC stage 4 and am currently being treated with R-CHOP. I went for my second opinion and was told that I also have Follicular lymphoma and not to worry about that one right now that I needed to focus on getting better with the DLBC. How can you not focus when you know you are going to have more treatments and now you have one that is incurable. Does anyone have this same problem and what are you doing? Thank you Loril
I have been cancer free for 5 months. I had stage 4 DLBC and Follicular non-hodgkins lymphoma. They discovered it in my hip after almost a year of hip pain. Then it finally showed a break and the doctors found it.
It's not uncommon for high-grade FL to transform into DLBCL, meaning that they don't necessarily have to be considered two entirely separate disease entities, and in this case, both subtypes affect the B cells, and chemotherapy treatment isn't much different. In fact it's pretty much the same. Did they give you any indication as to whether this was a transforming lymphoma? If not how were they able to determine that this was two different diseases? Again, the chemo treatment is the same (well, in FL it would more likely just be the Rituxan).
Hi Ross, thank you for the info. They did not tell me one transformed in to the other all though I suspected that from the HepC I have. It just said on the biopsy under comments that the Follicular lymphoma was noted too. But when I went to the cancer center the doc said the second one would have to be dealt with in time.
Hmm. The hep C complicates things. Either way, if these are two entirely separate cancers, meaning they emerged from two independently mutating and surviving cells, then going after the DLBCL first is best; for all we know, you may never require any treatment for the follicular lymphoma, provided it's indolent enough not to cause symptoms or problems.
Ross, I am happy to report I am clear. I completed the RChop and am trying to get back to normal life. Thanking God for each day I have...Lori
Thanks so much for stopping by and letting me know, that's fantastic news! I'm so glad to hear you completed treatment are got the 'all clear' sign. Congrats! I hope you can get back to normal, or a new normal, and that cancer will remain in the rearview mirror. Thanks again- no one ever follows up here, so I really appreciate it.