I also have diffuse Large B-Cell Lymphoma, stage 3, and have just finished the Rituxan-Chop chemotherapy. After three series of chemo the swollen spleen and all swollen nodes were back to normal in size and the prognosis for cure was good. The treatment is continuing for a total of six chemotherapy treatments so I am hoping for good results. Keep up your spirits and hope for good results. Rituxan has greatly increased the success rate for CHOP chemo. Good Luck!
I am a large B-cell NHL survivor!Diagnosed in 2004 had CHOP-R x1 then Hyper CVAD every 21 days x8 and intrathecal chemo(Spinal).In remission in 2005 had a Bone Marrow transplant with my own stem cells 1yr to the date of dx.
Here I am cancer free! 2010!!
Positive thoughts,prayer,Good attitude helps and alot of
meditation..when the pain got bad and meds did not help I went to my "Happy Place" helped even during spinal taps,headaches.I still use it to get through pain.
I was given 3wks to 3months..Only God/Higher Being knows..
don't give up...Good Luck!God Bless you!
hi, my mother is also going thru her chemotherapy R hypercvad for dlbcl. she was stage 4 with bone marrow involvement when diagnosed. she has done 5 rounds but now she is having cytopenia, low platelet n haemoglobin,so doctors have delayed her next cycle till her counts will go up.have you gone thru myelosuppression too and how long did it take for your counts to get in the normal range again. is it a common side effect with this chemotherapy and is there a cure for it.she has blood transfusions alongwith epogen injections. please reply if you have any info regarding this..
my mom also has diffuse large B-cell lymphoma, stage 3. She just had her 1st chemo treatment last Mon. She is having severe headaches from neck to top of head. Dr says from shot following chemo. Tylenol, pain meds, etc don't seem to touch it. Any suggestions?
sometimes an antiemetic called zofran can cause headaches post chemo. It is often give IV prior to chemo. They may be able to switch to a different anti emetic such as Aloxi IV prior to chemo. That does help some people. The shot following chemo is used to stimulate your bone marrow to produce white blood cells. This can cause a flu like achiness espically in the chest, pelvis,and legs.
I also went through the neulasta shot after my chemo. They had me take over the counter Zertec for the bone pain. I never had any. I took it twice a day for five days starting the day of the shot. Sure hope this helps.
When you say 'pain meds' what pain meds are you referring to? Opioid painkillers?
Another question is what shot is she given following chemo?
Finally, depending on the type of pain she's having ("throbbing" "burning" etc) different classes of meds might work better than others, and some of these meds are surprising.
She was given hydrocodone for pain. The shot was something to help boost her white blood cell count.
She says the pain in her head feels like there is a band stretched tight around her head, squeezing it.
OK, I'm guessing then maybe she was given a shot of Neulasta. and her doc thinks that it is to blame for the headaches? Frankly I don't know much about Neulasta, but her pain is pretty specifically described, surely others have experienced it in the past. I might suggest asking some of the people at this site's sister site, SupportGroups.com, as I know that quite a few people on the NHL boards have had Neulasta.
Hi, I am a DLBC Lymphoma Stage IV survivor from 3 years ago.
I had 6 cycles of R-CHOP then.
I didn't want to load my body with more medication than was necessary. The chemo was toxic enough.
I found drinking warm water cleared the headaches.
I would gulp 2 cups of water (about 500ml).
I would wait to urinate and then take 2 more cups.
I continued this routine until I felt better.
Sometimes I would sit up at night drinking water in this manner and would fall asleep in the wee hours of the morning. Wake up around 9am and have breakfast.
I made it a point to drink up 5litres of water in 24hours.
By the last chemo I was up to 31cups or 1 cup short of 8litres! I wrote everything down. It helped me track what helped and what didn't.
Eat raisins, dates, spinach to help get your haemoglobin levels up after each R-CHOP.
I am no doctor but can share what I learned through my experience - firstname.lastname@example.org - God bless you all
My sister in law was diagnosed with Waldenstroms non hodgins lymphoma stage 4 in bone marrow last September. After 8 months of chemo and another scan the cancer has apparently "morphed" into DLBC lymphoma still stage 4, but not in bone marrow. Realistically what do you think her survival rate is? she has 2 young children and and she has been hospitalized for the past week with low platelets, rbc and wbc. She doesn't want to do any research on her disease - she doesn't really want to know to much.
I have a cousin who was just diagnosted with lymphoma I haven't found out what kind as of yet Iam just trying to get an idea of some of the side effects of the chemo. I was told that they gave her 4 different types of chemo at one time. does this give any indication as to how serious this is?
No, it doesn't give any indication. Chemotherapy is most often delivered as combination chemotherapy, anywhere from two chemo drugs to several of them. And combination chemo can be a treatment for dozens of lymphoma subtypes at almost any stage as well, from I to IV.
I would learn the answers to two questions:
1) What is her specific lymphoma diagnosis?
2) What chemo regimen is she receiving? (most likely this will be in the form of an acronym, like CHOP or ABVD or MOPP).
Return with those answers and I can probably give you a good idea of side effects, etc.
In my post above (03/07/2010) I shared what I did for a particular reaction after Chemo.
I welcome anyone to mail me (email@example.com). Based on the email, if I know it is too urgent to be writing, I am willing to call any landline telephone number (at no cost to you).
I am sorry to hear about your sister-in-law's attitude you mention because it may be counter productive to her own survival.
I did everything possible to arm myself with up to date information. Encourage her to want to understand what had gone wrong if only to learn that there are things she can do to support the efforts of the medical profession trying to help her.
I am alive today because I belived that decisions should be based on appropriate information.
I was faced with tough decisions and I made them without wavering.
I am still here after 3 years to tell the tale.
A patient's attitude may be really key.
I read your post and thank you for being so positive and helpful. I am recently diagnosed with DLBC and it was found in the hip bone from surgery. I had a broken hip without falling and the doc was suspicious. I don't know what stage I am although I believe it is stage 4 due to my symptoms that I have. i also have HepC with many other problems. I definatley believe in being pro-active and welcome any help. I am going to have the Pet scan and bone marrow biopsy. Again I thank you for your help.. God Bless Lori
I have been cancer free for 5 months. I had stage 4 DLBC and Follicular non-hodgkins lymphoma. They discovered it in my hip after almost a year of hip pain. Then it finally showed a break and the doctors found it.
My wife suffered from night fever/sweats/shrills once in a month on average for about 3 to 4 years and finally developed a node on her right neck before diagnosing as NHL follicular lymph node cancer in Dec 2007.
She was given treatment of 6 cycles of CHOP chemotheraphy. After 2 1/2 years, she was found to have small lymph node on her left neck. But no other symptoms such as fever/sweats/shrills. Foolishly, in anxiety mood, we went for ESHAP salvation chemotheraphy from 14.8.2010 to 18.8.2010 which gave sevwere side effects to my wife -- loose motions(for 3 days), and cold and cough(for onw week) . Now she is fine. On taking second opinion from US doctor - only R Chop chemotheraphy is enough to control the small lymph. Please enlighten me in this
She was given treatment of 6 cycles of CHOP chemotheraphy. After 2 1/2 years, she was found to have small lymph node on her left neck. But no other symptoms such as fever/sweats/shrills. Foolishly, in anxiety mood, we went for ESHAP salvation chemotheraphy from 14.8.2010 to 18.8.2010 which gave severe side effects to my wife -- loose motions(for 3 days)and cold and cough(for onw week.) Now she is fine. The small node disappeared on 3rd day of ESHAP. On taking second opinion from US doctor(oncology)-only R Chop chemotheraphy is enough to control the small lymph node. Please enlighten me in this
I really wish that your mother will be treated. Encourage her and if you can give her more reasons to smile, give her.
Hi I'm Lori and I was reading your post about your mom having stage 3. I had stage 4 large B cell and stage 4 follicular Lymph at the same time. They found it in my hip when I had hip replacement surgery. The doctor was suspicious because I am only 54. Thank God for his wisdom. I completed RCHOP with no further therapy due to the fact I have HepC as well. No stem cell for me. But I am very pleased to tell you I am clear. It has only been two and a half months but I thank God for every day I have.