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gretchen:
I'm sorry I don't have any helpful hints, I just have what you already surely know, and that is that the odds are on your side. Even an 'unfavorable' diagnosis of IIB has a 5-year disease free percentage of close to 90%, and that 5-year threshold is how cancer is defined as being cured.
That said, none of us could be patient even if the percentage were 99%. I'm going to post your question at the HL forum for site's sister site, supportgroups.com, and see what kinds of responses we get.
Ross
The link to the posted question is HERE.
Ross,
Thanks...I agree, even if the odds were 99% it still isn't 100%! I was diagnosed with a huge mass in my chest that was affecting my breathnig and the main artery from the brain to the heart and had some facial swelling, fever, night sweats, itching, chest tightness, wheezing, cough, all things we thought were due to a cold that I just couldn't "shake". I went for a chest x-ray which showed the mass and it took over from there. So now, everything I feel, a little twinge here, a "funny" feeling there, I think it could be the cancer. I knew that I didn't feel well at the time but had no idea how sick I really was and that is scary to me. I'm so happy to have found this site, just reading everyone comments has helped. Unless you have been through it you have no idea what we are feeling, you may be able to imagine what we are feeling but not how alone you feel with your diagnosis. I had GREAT family/friend support during treatment but now I think you feel a little "forgotten". You go from many appointments with doctors, treatments, etc., to next to nothing and nobody is "watching" you. I'm trying to cope as best I can and thank goodness I have a wonderful support system but they still just don't know how you are feeling.
i know exactly how you are feeling, its hard to breathe most of the time, just not knowing, and thinking about it everyday is so stressful,
what i can tell you is take care of yourself for you
take the time out, to go to the store and get some dead sea salt and take a nice bath, do not focus on what might happen its hard for me too,, maybe more extreme for me
because i forget that life goes on everyday,,constantly worring about every lab report,, i try not too, and i know its hard very hard,, but take time out for you treat yourself make your self happy,, do not remain frozen
in your situation,,