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Lymphoma Organizations and Sites in the United Kingdom and Ireland

You may want to contact the following groups in your search for support of lymphoma in the UK and Ireland.

United Kingdom


Organizations

• Cancerbackup provides information and support for those with cancer including lymphoma. They have a database of UK support links.
• Leukaemia Research Fund - Home Page or write to info@lrf.org.uk
• The Lymphoma Association in the UK (formerly the Hodgkin's Disease & Lymphoma Association (HDLA) provides information for patients and health care professionals. Very well done site. See their Young Adult site LIFE
• The Study for Hodgkin's in the Elderly (SHIELD) Lymphoma Project in the UK aims to register elderly (>60) patients with Hodgkin's disease and collect simple data to understand the range of current therapies and outcomes.
• The British National Lymphoma Investigation
• The British National Cancer Research Network
• The Scotland and Newcastle Lymphoma Group


Financial Help

• Cancerbackup has a section on financial issues


Personal Sites

• Sean is a courageous kid in the UK fighting Hodgkin's
• The first comprehensive site on lymphoma was CanSurvive by Amanda Gee. The site is now gone but I would like to pass on our thanks for building the first large site on lymphoma on the Internet
• Know of more, contact us and we'll add them


Ireland


• The Hodgkins United Group (HUG) is the support group for Hodgkins and non-Hodgkins lymphomas in Ireland
Ireland Telephone Freephone 11 800 200 700
email: info@lymphoma.ie
• Irish Cancer Society
Freephone 1 800 200 700
e-mail: helpline@irishcancer.ie


Both


• For those in the UK and Ireland, there is a group for people with Hodgkin's or NHL. More information is at http://groups.yahoo.com/group/nhl-uk/


Other Countries / Other Organizations


Currently seeking information on organizations providing support for lymphoma patients and their family & friends. Please write if you know of such organizations.

 

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Since the early 1970s, incidence rates for non-Hodgkin’s lymphoma have nearly doubled. Incidence rates for Hodgkin’s disease have declined about 60%. Better means of diagnosis has also increased the number as doctors better understand cancer of lymphocytes verses other diseases.
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