Waiting is the Hardest Part

9/23/15 – On Tuesday, September 22nd I had another great appointment with our nurse practitioner from the transplant team. My CMV is gone and I have been taken off of Valcyte.
Also, I have been taken off of prednisone. Now that I am off of prednisone we are in a “wait and see” mode where we are looking for signs of GVHD to appear. As soon as I see signs of it I am to take a picture of the rash and send it to our nurse practitioner. If we do not see signs of GVHS we will then move forward with a DLI in the late September/early October time frame.
Also, I am now off the heart monitor. I have a follow up with my heart doctors on October 5th.
Other than that I have a PET scan scheduled on October 1st with a follow up with Dr. Goy on October 8th. Understanding where I stand with my MCL is critical for the go forward plan. There is certainly more to come on this. I wish I could fast forward through the next week and a half. This is where it is best for me to be patient. I’ll just make sure I take this time to enjoy life and not worry. It’s back to having Faith, Hope and Belief in God.
Here is a link to a great song by Chris Tomlin called “On Our Side”. It stresses how God is truly on our side. Enjoy!https://www.youtube.com/watch?v=AsomneOrQsE
What then shall we say to this? If God is for us, who can be against us?Romans 8:31
More to come…

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