Hitting a Home Run with Ibrutinib

7/22/13 – I met with Dr. Mateo today to get the results of my 2nd set of scans. His comment to me was:  “you have really hit a home run with this drug.” After 126 days on Ibrutinib my MCL has reduced by 90%.
I am now starting cycle 7. This will be a little different because I am having some dental surgery on August 1st. I am having a tooth extracted and since it will require stitches I will need to discontinue taking Ibrutinib for 7 days prior to the procedure and another 7 days after.  This is required because one of the side effects of the drug is, like many other drugs, it causes the blood to be thinned. With this you always need to be cautious of excessive bleeding. I am not seeing this as a big deal.
Regarding the Bone Marrow transplant process… so far nothing has come up in our donor search. Coincidentally, while we were at the Cancer Center we ran into our transplant coordinator. She shared with us that the plan is to take a closer look at my brother, who was a 50% match. We will also test my daughters, who are 20 and 23 years old, to see if either of them would be a good match. Both of my daughters will be 50% match. In speaking to both my daughters, they are both very excited with possibility of being the donor for their dear ol dad. Sounds like they want to arm wrestle for this “honor”. I am so blessed to have the greatest daughters in the world. And I would be remiss if I didn't say how lucky I am to have the great brothers I have.
I know that a 50% match is not ideal but according to the transplant coordinator, there is not any conclusive evidence on if a 100% match of a someone who is not related to me as being more or less effective than a 50% match of someone who is related to me. In addition, The John Theurer Cancer Center at Hackensack University Medical Center is performing more and more 50% match transplants with excellent results.
So for now just need to be patient and live my life to the fullest… one moment a a time.
“For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life.” John 3:16
More to come…

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