Happy Day 100

3/7/14 – It is Day +100… Woohoo!!! This morning when I awoke there was a huge rainbow in the sky, all the snow had melted, the birds were all singing happy songs, little bunnies hopped about my yard in joy and all my hair had returned… well, no that’s not what really happened and to be honest I am really unsure what exactly is supposed to happen on Day 100. It certainly is a marvelous milestone for me to have reached. There is no doubt I have much to be joyful about.
The first 100 days after a stem cell transplant are significant because they carry highest risk of having the worst reactions to the transplant. I have been so very blessed to have made it through my first 100 days with flying colors. To add to my blessings, at yesterday’s checkup I was told that my blood counts continue to be great. I received more good news when I learned that I am now 100% of my donor.
As I think back about a year ago... I was doing so well on Ibrutinib and I was very leery of having a stem cell/bone marrow transplant. I tried my best to get educated about it but the more I read the more nervous I became. This made me want to seek out an alternative to having a transplant. I took it as far as asking Dr. Goy if there was any way to avoid having a transplant. I even suggested that I could maybe stay on Ibrutinib forever and possibly never need a transplant. It was then that Dr. Goy assured me that the transplant was the way to go and that all would be fine. Well, he was right.
So now that I made it through 100 days what’s next for me? Well, I think this will be a bit if a moving target but these are things I know so far:·         I will continue to be monitored periodically to make sure my counts are good and that I am free of any and all things viral. ·         I will be slowly taken off of my medications.·         I have been given the go ahead to resume working the first week of April with some limitations that my doctors will communicate to my work.·         At around day 180 I will start getting my immunization shots. ·         I can begin to get out more but still need to be very careful. Reaching this 100 day milestone does not mean I am ready to start giving hugs and shaking everyone’s hand. I still need to be couscous of germs and infections.·         Not specific to a stem cell transplant but I simply need to live a healthy life. This is something we should all do.
It is just so hard for me to me to put into words just how happy and grateful I am for all the good in my life and for all the people who have supported and prayed for me. God is Good! God is Great!
Today I will celebrate my Day +100. Please join me. Here is a link to a fun song called “Happy” to get us started:https://www.youtube.com/watch?v=y6Sxv-sUYtM
May God Bless you all
My next appointment at the Cancer Center is Monday, March 17th (which happens to be my birthday).
Great is our Lord and mighty in power; his understanding has no limit.Psalm 147:5
More to come…


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