Go Platelets!

1/28/16 – I continue to be at the John Theurer Cancer Center to treat my ITP and low platelets. My day can include me getting platelets (HLI or cross matched), IVIG, Rituxan, NPlate, etc…
Yesterday was one of those days. The day started with my platelets at 6. I received IVIG, and two bags of HLI platelets. The day ended with my platelets at 58. Woohoo!!!! The hope now is that they stick.
I will head back to the cancer center on Friday, January 29thfor a similar treatment where I will get IVIG, platelets (cross matched) and an NPlate shot.
I would really love to get to the point where we know what is causing ITP in me… what works best in treating it and what’s not working. This of course requires patience on my part being we are going through a process of elimination.
We did find out that my stool sample came back negative for H. pylori. It is clear that it is not the cause of the ITP. In addition I can resume taking Penicillin V potassium, Bactrim and Livalo. They were not found to be a cause either. On top of that I am being weaned off the prednisone being it wasn’t helping with the ITP.
Next week should prove to be very informative. I’ll get my third Rituxan treatment. It seems that with treatment we should be able to tell if the Rituxan is working.
From the perspective of keeping the eye on the Mantle Cell Lymphoma ball, I will have a PET Scan on Friday, February 5th.  This ITP issue has caused a setback but the fight against MCL still needs to be in the forefront. Being in remission and keeping it from coming back is my top priority. I am very much looking forward to be able to begin with the PD-1 (Opdivo) treatments… but I need to be patient.
Be still before the Lord and wait patiently for him; fret not yourself over the one who prospers in his way, over the man who carries out evil devices! Refrain from anger, and forsake wrath! Fret not yourself; it tends only to evil. For the evildoers shall be cut off, but those who wait for the Lord shall inherit the land.Psalm 37:7-9

More to come…


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