A Case of ITP

1/8/16 – We were planning to start treatment with PD-1 (Opdivo) next week but I run into another obstacle. I started to bleed from my nose and mouth. I have also developed a bad rash on my legs… and it’s not GVHD. The rash is pinpoint red spots, also known as a petechial rash. I went to the cancer center today to have this checked out. The first thing we learned was my platelets were 8 which is very low (Normal platelets counts are typically around 150). Also I was diagnosed with ITP.
ITP (Idiopathic thrombocytopenic purpura) is a bleeding disorder in which the immune system destroys platelets, which are necessary for normal blood clotting. It is typical that persons with the disease have too few platelets in the blood.
I guess my new immune system, the one that was put in place to help keep my MCL in check, has the ability to work against me and destroy my platelets. I’m thinking that this is just another challenge that I will get passed.
Today I was treated with IV steroids and an infusion of platelets. In addition I was put on prescriptions of prednisone and fluconazole. I have a follow up appointment on Monday. January 11th. If the current treatment is not effective other possible treatment options can include an IVIG or Rituxan.
Once the ITP is under control and my platelets have rebounded we will revisit starting treatments with Opdivo.
Here is a YouTube link to a great song of encouragement called “Brother” by NEEDTOBREATHE feat. Gavin DeGraw. https://www.youtube.com/watch?v=61Wm_qlVD4QEnjoy!
Three times I pleaded with the Lord about this, that it should leave me. But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly of my weaknesses, so that the power of Christ may rest upon me. For the sake of Christ, then, I am content with weaknesses, insults, hardships, persecutions, and calamities. For when I am weak, then I am strong.
2 Corinthians 12:8-10
More to come…


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