4th Cycle with a side of DLI

8/8/15 – On Monday, July 27th I started my 4th cycle. I had my additional treatments on the 28th and the 29th. According the Dr. Goy this should be my last cycle of RBAC. I am very hopeful that I will be able to avoid any hospital time. As we approached the later part of the week I was feel tired and weak.
On Monday, August 3rd I had my first ever DLI (Donor lymphocyte infusion). The goal with this will be to booster my new immune system. We are looking to get some signs of GVHD (graft versus host disease). It could take as much as 7 to 9 weeks before we will see any impacts of the DLI. One impact we did see right away is that it made me smell bad. I smelled like cream corn for a couple of days. By the way, did I ever tell you how much I hate cream corn?
On Wednesday, August 5th I had a follow up to check my counts from the prior week’s chemo. As with my first three cycles, all my blood counts had crashed. I was given platelets because there were at 12. My WBC counts were 0.6.
On Friday, August 7th, I again was at the cancer center for another follow up. Again my counts were very low. My WBC count was 0.9 and my platelets were at 18.  I was given both blood and platelets. The plan is for me to have another follow up on Monday, August 10th.
So… the good news is that I have managed to stay out of the hospital. I will say that I have had fevers over the last few days that were at or above the 100.5 mark. What I have been doing… which is probably not the right thing, is to give it a half hour and check it again. Each time my temperature had fallen back below the 100.5. YES, I know I am told that I need to call right away once I hit 100.5 but I much prefer to deal with the cancer center during the day then the ER at night. This probably falls under the “do as I say, not as I do” category. Truly if you run a fever of 100.5 while in treatment you should call into the cancer center (or on call doctor) and follow whatever instructions are given to you.
The bad news… I do not believe there is any. I am very happy to be living as normal a life as I can.
What does Monday have in store for me?... Only God knows… and I turn all my cares, worries and fears over to him.
Here is a great new song that wonderfully drives home this point. It is called “Cast My Cares” by Finding Favour”. Here is the link. Enjoy!https://www.youtube.com/watch?v=bKuAMmTqUbs
There is no fear in love, but perfect love casts out fear. For fear has to do with punishment, and whoever fears has not been perfected in love.1 John 4:18
More to come…
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